The AKU Society of North America is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations and application for grants.
April 10, 2013 - A study on nitisinone is being conducted in the US and is currently recruiting participants. (Read more)
We are sad to say farewell to one of our board members, Pete Ermie,
who left his earthly friends behind on May 5, 2013. Pete, you will be missed!
The AKU Society of North America • 10451 Roselle Street #300 • San Diego, CA 92121 • (800) 549-8110
501(c)(3) EIN #27-5527376