AKU Society

The AKU Society of North America is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations and application for grants.


Get up to Date on SONIA 2: The SONIA 2 clinical trials are about to be launched and will take place in three test centres across Europe. The first patients will begin on April 7th in Piestany, Slovakia. Our Liverpool centre will be the next to start on April 14th. The final location to start will be the Paris centre in France, which is scheduled to begin on May 12th. Dates may change so keep your eye out for updates. For more information check out this great visual blogpost. For more information visit: akusociety.org



The AKU Society of North America • 10451 Roselle Street #300 • San Diego, CA 92121 • (800) 549-8110

501(c)(3) EIN #27-5527376